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Patient Advocacy & Engagement

We are committed to a systematic approach in patient engagement.

We listen to patients and their communities, collaborate on the areas of shared interests and strive to understand their needs.

Learn More about the diseases and conditions we treat
Advocacy and Engagement
My Rare Life
My Rare Life

Recognising rare disease heroes across Europe

Each year we join the community to raise awareness of rare conditions and mark Rare Disease Day.

Learn More visit myrarelife.eu website