We are committed to a systematic approach in patient engagement.
We listen to patients and their communities, collaborate on the areas of shared interests and strive to understand their needs.Learn More about the diseases and conditions we treat ⌃
Recognising rare disease heroes across Europe
Each year we join the community to raise awareness of rare conditions and mark Rare Disease Day.Learn More visit myrarelife.eu website ⌃
Diseases & Conditions
We focus on rare conditions where we believe we can make a meaningful impact.Learn More Diseases & Conditions ⌃
Grants & Donations
We provide a variety of opportunities to further support our patient communities.Learn More about grants and donations ⌃