Patient Community

We are inspired by the patients we serve.

Patient Advocacy & Engagement

We are committed to a systematic approach in patient engagement.

We listen to patients and their communities, collaborate on the areas of shared interests and strive to understand their needs.

My Rare Life

Each year we join the community to raise awareness of rare conditions and mark Rare Disease Day.

We focus on rare conditions where we believe we can make a meaningful impact.

Learn More ⌃

We provide a variety of opportunities to further support our patient communities.